Monday, February 7, 2011
Morgan Update Super Bowl Sunday - from Jill
Morgan has been doing better each day. Our main focus for this whole last week was solely on eating and gaining weight. She struggled to take in the neeed amount until the threat of a feeding tube was mentioned about mid week. Since then sh...e has been doing much better. If she continues to increase the volume of formula and has steady weight gain, we may get to go home.....There is not a timeline on this yet, just depending on her daily progression.
We finally switched formulas to Elecare(google it :)) and increased her prevacid to twice daily. These things seem to be helping tremendously along with the fact she is almost completely over the infection and is getting healthier each day.
We are continually grateful for the prayers and support you have shown. Thank you so much! God is wonderful!!
We finally switched formulas to Elecare(google it :)) and increased her prevacid to twice daily. These things seem to be helping tremendously along with the fact she is almost completely over the infection and is getting healthier each day.
We are continually grateful for the prayers and support you have shown. Thank you so much! God is wonderful!!
Friday, January 28, 2011
From Jill: Morgan is now out of the PICU and on the 5th floor. I got to hold her and feed her with a bottle tonight!!!! Talk about one proud mama! It is so great seeing that precious smile again. Thank you Lord for your amazing blessings! I also am very proud of my Wyatt....he was chosen to be in the first book club at his school! It has been a great day!
Thursday, January 27, 2011
Much anticipated update!! Wednesday, January 26, 2011 at 10:21pm
Thank you all for the prayers and concern for Morgan. we apologize for the delay in updates...as Cody mentioned earlier, we haven't had the best luck with phones or computers lately. No news is usually good news and is in our case now. They took her off the ventillator yesterday afternoon and she is doing well. Cody got to hold her last night and iI was so thrilled to get to hold het today for the first time in over a week and a half!! they have removed her artline and a few of the other IV sites. They are considering moving her out of ICU possibly tomorrow..... we will be sad to leave the wonderful friends we have made there and the awesome nurses and doctors we have been so blessed and amazed by.
The road we have ahead of us is going to be tough, but necessary for a full recovery. We have absolutely loved all the support you have shown us in various ways. One of the hardest things we are going to have to do is keep her in isolation for the next 2 -3 months. This means not taking her pretty much anywhere and not having contact with people. No Walmart, no church, no birthday parties, no trips to the zoo, etc. Unfortunately this also means limiting visitors beginning now and throughout the next couple of months. We also are going to have to make some drastic measures at home also to ensure her health. We love yall and pray that you will understand.
We will continue updating as we can. Love yall all very much!!! Praise God for her continued progress.
The road we have ahead of us is going to be tough, but necessary for a full recovery. We have absolutely loved all the support you have shown us in various ways. One of the hardest things we are going to have to do is keep her in isolation for the next 2 -3 months. This means not taking her pretty much anywhere and not having contact with people. No Walmart, no church, no birthday parties, no trips to the zoo, etc. Unfortunately this also means limiting visitors beginning now and throughout the next couple of months. We also are going to have to make some drastic measures at home also to ensure her health. We love yall and pray that you will understand.
We will continue updating as we can. Love yall all very much!!! Praise God for her continued progress.
Monday, January 24, 2011
Morgan Update 1/24/2011
Hello all, so sorry for the delays in updates, since we have been here Jill and I have managed to break 2 phones and a our laptop!!
Over the weekend Morgan progressed very well, she is currently taking a steroid for inflammation in her throat, due to when they tried to pull out her breathing tube.
Yesterday they took her off of everything except her feeding tube, she was able to go about and hour until they decided to put her back on the ventilator.
The doctor said this is usually common when trying to ween babies off the ventilator so not much of set back. When we think about it this was Morgan's only set back in a week of being on PICU so we are very grateful for that.
Thank you all again for all of your prayers, calls, letters and posts.
The backup cpu is on the way so hopefully we can update more frequently
~ Cody
Over the weekend Morgan progressed very well, she is currently taking a steroid for inflammation in her throat, due to when they tried to pull out her breathing tube.
Yesterday they took her off of everything except her feeding tube, she was able to go about and hour until they decided to put her back on the ventilator.
The doctor said this is usually common when trying to ween babies off the ventilator so not much of set back. When we think about it this was Morgan's only set back in a week of being on PICU so we are very grateful for that.
Thank you all again for all of your prayers, calls, letters and posts.
The backup cpu is on the way so hopefully we can update more frequently
~ Cody
Friday, January 21, 2011
Update 1/21/2011 3:30pm From Momma Jill
I love posting updates when we have positive progress to report! Miss Morgan is improving little by little daily! Today there has been some major positive things going on...
First of all, they moved her off of the Oscillator and on to the conventional ventilator. This is huge! They also took her off of the Nitrogen also. They also removed her chest tube(the one in her side) that was pulling out any air that might have accumalated around the outside of her lungs. She has adjusted to all of these changes very well. Her blood gas lab(that they have been checking frequently) is the best it has been.
She still has the feeding tube, but is at full feeds!! She is getting 17mL of Similac Sensitive every hour at 24 calories per ounce.
They did go ahead a give her another blood transfusion, because they continue to draw so many labs daily and being sick, she isn't able to produce as much blood as she needs. All of the transfusions she has received have been from the same donor and from the same unit of blood.
They have had to give her any paralytic since yesterday morning!! This means that she is awake(although they assured me she is in NO PAIN) and she is moving around alot. We are still cautioned as to not get her too excited because she starts coughing and dropping her stats.
We are still anxiously awaiting the results from the Immune analysis labs that we are supposed to find out today about. Hopefully, this might provide us with a better understanding as to what caused the infection....Or it could not also.
We are continually thankful for the many blessings God has provided through this experience. Thank you so much for all of your prayers. We are forever grateful.
We love you and thank you all,
Cody, Jill, Wyatt, and Miss Morgan
First of all, they moved her off of the Oscillator and on to the conventional ventilator. This is huge! They also took her off of the Nitrogen also. They also removed her chest tube(the one in her side) that was pulling out any air that might have accumalated around the outside of her lungs. She has adjusted to all of these changes very well. Her blood gas lab(that they have been checking frequently) is the best it has been.
She still has the feeding tube, but is at full feeds!! She is getting 17mL of Similac Sensitive every hour at 24 calories per ounce.
They did go ahead a give her another blood transfusion, because they continue to draw so many labs daily and being sick, she isn't able to produce as much blood as she needs. All of the transfusions she has received have been from the same donor and from the same unit of blood.
They have had to give her any paralytic since yesterday morning!! This means that she is awake(although they assured me she is in NO PAIN) and she is moving around alot. We are still cautioned as to not get her too excited because she starts coughing and dropping her stats.
We are still anxiously awaiting the results from the Immune analysis labs that we are supposed to find out today about. Hopefully, this might provide us with a better understanding as to what caused the infection....Or it could not also.
We are continually thankful for the many blessings God has provided through this experience. Thank you so much for all of your prayers. We are forever grateful.
We love you and thank you all,
Cody, Jill, Wyatt, and Miss Morgan
Morgan Update 1/20/2011
We woke up this mornig to many nurses standing around Morgan's bed which usually scares us, but it was shift change and they were all admiring our fighter and the progress she had made through the night.
We are still not off the oscillator but we are getting close.
She hasn't had a paralytic since around 8am, she is still on sedation but is waking up and wiggling around every so often.
BIG brother came to visit her today, he took everything great but not many worries for a five yr old. Jill and I got to spend some much needed time with him as well.
We again thank you for all the prayers that are being lifted up for everyone here in the PICU
~ Cody
We are still not off the oscillator but we are getting close.
She hasn't had a paralytic since around 8am, she is still on sedation but is waking up and wiggling around every so often.
BIG brother came to visit her today, he took everything great but not many worries for a five yr old. Jill and I got to spend some much needed time with him as well.
We again thank you for all the prayers that are being lifted up for everyone here in the PICU
~ Cody
Wednesday, January 19, 2011
From Cody & Jill: Morgan Update 1-19-2011 5pm
So far so good, she has been steadily improving over the past 24 hours, she is still on the oscillator, but the doctors continue to dial it down.
It is probably going to be a a couple more days before they can move her to a conventional ventilator
Today's goal was to increase her feeding to 15 mL by 7 pm this is up from 5 mL.
We can't thank everyone enough for all of your thoughts, prayers and blessings. One thing we would like to ask of you is that while we all continue to pray for Morgon's recovery, please include the many other children that are our neighbors here in the PICU. We are so blessed to have such an awesome support system and we realize that many of these children near us are not as fortunate as we are. Thank you for that!
We love yall and can't wait to post more improvements as they come! May God bless each of you.
It is probably going to be a a couple more days before they can move her to a conventional ventilator
Today's goal was to increase her feeding to 15 mL by 7 pm this is up from 5 mL.
We can't thank everyone enough for all of your thoughts, prayers and blessings. One thing we would like to ask of you is that while we all continue to pray for Morgon's recovery, please include the many other children that are our neighbors here in the PICU. We are so blessed to have such an awesome support system and we realize that many of these children near us are not as fortunate as we are. Thank you for that!
We love yall and can't wait to post more improvements as they come! May God bless each of you.
Tuesday, January 18, 2011
(Update from Jill) 1pm 1/18/2011
Today's goal is much the same as yesterday...."To not have any excitement", per the Doctors words. She is steadily doing better, but they do not want to push her to hard, too soon. I so greatly appreciate all the wonderful doctors and nurses that have been working so hard for Morgan's best interest. I love the fact they none of them ever settle for ordinary. They check and double check things and are constantly running ideas off of each other in hopes of finding a new lead or idea of what caused this infection. They had another doctor come earlier and do an overall question and answer session with us, in hopes of seeing something they may have missed. This really impresses me! As one of the doctors says repeatedly, "This is a marathon, not a sprint", we will continue to wait patiently as they work fervently to rule out each and every illness they can. Thank you again for your continued prayers. Her fighting spirit shows out daily in her numbers and her little wiggles. May God bless each of you like he has us.
Update 11pm 1/17/2011 from Jill: She did just what the doctors told her...she didn't do anything too exciting today! That is a good thing! However, her wonderful night Nurse, Cassidy, did put on some relaxation music for her and she started wiggling around! She let her dance(wiggle) a little before having to give her some more paralytic so that she wouldn't get too excited and drop her stats. They just now suctioned her lungs to remove some unwanted mucus that was affecting her oxygenation. Nurse Cassidy said, "She was a Rock Star!" during the procedure!! That is good news. She has great color today and is looking so much better. Goodnight and much love to you all. ~Love, Cody, Jill and Baby Morgan
Monday, January 17, 2011
Please Pray for Morgan...
This blog has been created to update friends and family about sweet Baby Morgan Lawson. Morgan was born on October 8, 2010 and is currently in the PICU at Cooks Children's Hospital in Fort Worth.
Morgan has been at Cook Children's Hospital since Sunday, January 9th. Please pray for sweet Morgan and her parents Cody & Jill Lawson and her big brother Wyatt. This blog has been set up by friends of the family.
We are asking for PRAYERS for Miss Morgan and that GOD watch over this little angel. We will be setting up a PayPal account for the family in the next couple of days. Donations can be made through the blog and will help the family with medical bills, food, rooming expenses, etc....
Morgan has been at Cook Children's Hospital since Sunday, January 9th. Please pray for sweet Morgan and her parents Cody & Jill Lawson and her big brother Wyatt. This blog has been set up by friends of the family.
We are asking for PRAYERS for Miss Morgan and that GOD watch over this little angel. We will be setting up a PayPal account for the family in the next couple of days. Donations can be made through the blog and will help the family with medical bills, food, rooming expenses, etc....
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